Conquering Childhood Arthritis

The Arthritis Foundation works with families to shape new solutions to conquering childhood arthritis.

JA Research

Turning the Tide for Families Living With JA

Too many children live a life restrained by frequent arthritis pain and the detrimental effects the disease can have on their organs and systems. Add the emotional toll childhood arthritis and other rheumatic conditions can take, on top of endless doctors’ visits, and it’s clear that answers and solutions are urgently needed. That’s why the Arthritis Foundation is committed to making sure JA patients and their families are guiding everything we do. This video summarizes our approach.

At the Arthritis Foundation, we believe it’s imperative that research, data and registries all connect to expedite a cure. And better treatments are needed sooner than later. Personalized medicine — treatment and care based on the specific needs and condition of an individual patient — will eliminate the current trial-and-error approach. The engagement of patients in this quest will help unravel the mysteries of juvenile rheumatic diseases.
The Arthritis Foundation partners with the Childhood Arthritis and Rheumatology Research Alliance (CARRA) to not only fund research for treatment options, but also to activate large-scale efforts that compare the effectiveness of different treatments, both in the short- and long-terms. Our partnership with CARRA ensures that issues important to patients and families guide the direction of research.
CARRA is a nonprofit research organization of more than 500 physicians, researchers and other health care professionals throughout the United States and Canada. Their membership includes more than 90% of the active pediatric rheumatologists in North America.
Our support equips CARRA with the resources to enhance and expand research data collection for new discoveries. Together, we are building a patient registry to help improve and standardize patient care and find cures for the many forms of juvenile arthritis (JA).
Since 2002, the Arthritis Foundation has invested nearly $30 million toward childhood arthritis research, thanks to the generous support of our donors. Donors have fueled special research projects through our annual Juvenile Arthritis Conferences, as well as the Juvenile Idiopathic Arthritis (JIA) Patient-Focused Drug Development meeting co-hosted by the Foundation and CARRA. The results from this meeting bring patient voices to the development of new FDA guidance for JIA research.
Donors also fund a variety of investigator-initiated grants in partnership with CARRA, supporting specific research, training and other components. Investigators can learn more about Arthritis Foundation-funded research opportunities on the CARRA Grants and Funding page.
As part of the Patients, Advocates & Rheumatology Teams Network for Research & Service (PARTNERS), we are working with other consortium members to create a platform where patients and their families can participate in research they feel is most important. When patients and families register with PARTNERS, information is collected about their illness, background and interests, which helps identify specific, meaningful research opportunities. Once registered, they learn about suitable activities within PARTNERS.
These can include:
  • Completing online surveys
  • Serving on a PARTNERS committee
  • Contributing personal experience and skills to projects
  • Contributing to research topic ideas and helping write research study questions
  • Providing patient perspectives for study designs
  • Helping researchers communicate study results in a way that’s easier for patients and families to understand
To find out more and join, visit PARTNERS.
Live Yes! INSIGHTS

By giving us 10 minutes, you become part of a force that will change the lives of the more than 54 million people with arthritis. Your voice matters.

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    Proud Partners of the Arthritis Foundation make an annual commitment to directly support the Foundation’s mission.

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Every gift to the Arthritis Foundation will help people with arthritis across the U.S. live their best life. Whether it is supporting cutting-edge research, 24/7 access to one-on-one support, resources and tools for daily living, and more, your gift will be life-changing.

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Help millions of people live with less pain and fund groundbreaking research to discover a cure for this devastating disease. Please, make your urgently-needed donation to the Arthritis Foundation now!

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Become an Arthritis Foundation member today for just $20. You'll receive a year's worth of Arthritis Today magazine, access to helpful tools, resources, and more.

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Honor a loved one with a meaningful donation to the Arthritis Foundation. We'll send a handwritten card to the honoree or their family notifying them of your thoughtful gift.

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Volunteer


Volunteer Opportunities

The Arthritis Foundation is focused on finding a cure and championing the fight against arthritis with life-changing information, advocacy, science and community. We can only achieve these goals with your help. Strong, outspoken and engaged volunteers will help us conquer arthritis. By getting involved, you become a leader in our organization and help make a difference in the lives of millions. Join us and become a Champion of Yes.


More About Volunteering

Live Yes! INSIGHTS


Give Just 10 Minutes.

Tell us what matters most to you. Change the future of arthritis.

By taking part in the Live Yes! INSIGHTS assessment, you’ll be among those changing lives today and changing the future of arthritis, for yourself and for 54 million others. And all it takes is just 10 minutes.

Your shared experiences will help:

- Lead to more effective treatments and outcomes
- Develop programs to meet the needs of you and your community
- Shape a powerful agenda that fights for you

Now is the time to make your voice count, for yourself and the entire arthritis community. 

Currently this program is for the adult arthritis community.  Since the needs of the juvenile arthritis (JA) community are unique, we are currently working with experts to develop a customized experience for JA families. 

How are you changing the future?

By sharing your experience, you’re showing decision-makers the realities of living with arthritis, paving the way for change. You’re helping break down barriers to care, inform research and create resources that make a difference in people’s lives, including your own.

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Partner


Meet Our Partners

As a partner, you will help the Arthritis Foundation provide life-changing resources, science, advocacy and community connections for people with arthritis, the nations leading cause of disability. Join us today and help lead the way as a Champion of Yes.

Trailblazer

Our Trailblazers are committed partners ready to lead the way, take action and fight for everyday victories. They contribute $2,000,000 to $2,749,000

Visionary

Our Visionary partners help us plan for a future that includes a cure for arthritis. These inspired and inventive champions have contributed $1,500,00 to $1,999,999.

Pioneer

Our Pioneers are always ready to explore and find new weapons in the fight against arthritis. They contribute $1,000,000 to $1,499,999.

Pacesetter

Our Pacesetters ensure that we can chart the course for a cure for those who live with arthritis. They contribute $500,000 to $999,000.

Signature

Our Signature partners make their mark by helping us identify new and meaningful resources for people with arthritis. They contribute $250,000 to $499,999.

Supporting

Our Supporting partners are active champions who provide encouragement and assistance to the arthritis community. They contribute $100,000 to $249,999.