Conquering Childhood Arthritis

The Arthritis Foundation incorporates the participation of patients and their families in all aspects of our programs, ensuring that issues they care about guide our efforts.

Conquering Childhood Arthritis
Commonly referred to as patient engagement, these efforts to enlist the specialized knowledge of arthritis sufferers and their loved ones help to unravel the mysteries of juvenile rheumatic diseases. Personalized medicine - treatment and care based on the specific needs and condition of an individual patient - will eliminate the current trial-and-error approach.

The Arthritis Foundation partners with the Childhood Arthritis and Rheumatology Research Alliance (CARRA) to not only fund research for disease treatment options but also to activate large-scale patient engagement efforts to compare the effectiveness of different treatments both in the short- and long-term. Our partnership with CARRA ensures that issues important to patients and families guide the direction of research.

CARRA is a non-profit research organization of more than 500 physicians, researchers and other healthcare professionals throughout the US and Canada. Their membership includes more than 90% of the active pediatric rheumatologists in North America. 

Our support equips CARRA with the resources to enhance and expand research data collection that forms the basis for future studies and new discoveries. The Arthritis Foundation, with CARRA, are building a patient registry to help improve and standardize patient care and find cures for the many forms of juvenile rheumatic diseases.

Since 2002, the Arthritis Foundation has invested nearly $30 million toward childhood arthritis research through the generous support of our donors! Donors have enabled us to fund special research projects at our Juvenile Arthritis conferences, as well as the Juvenile Idiopathic Arthritis (JIA) Patient-Focused Drug Development meeting which the Arthritis Foundation co-hosted with CARRA. The results from this meeting will lend patient voices to the development of new FDA guidance for JIA research.

Donors also allow us to continue offering a variety of investigator-initiated grants in partnership with CARRA. These range from specific research support, through training and site support funding. Investigators can learn more about Arthritis Foundation-funded research opportunities on the CARRA Grants and Funding page.

As a member of the Patients, Advocates & Rheumatology Teams Network for Research & Service (PARTNERS), we are working with other consortium members to create a platform that includes the participation and voice of patients and families in research that they feel is most important to those living with the disease. When patients and families register with PARTNERS, information is collected about them, their illness, backgrounds, skills and interests that help identify the participation activities they will find most meaningful. Once registered, they will be informed of opportunities for participation within PARTNERS.

Opportunities may include:
  • Completing online surveys
  • Serving on a PARTNERS committee
  • Contribute personal experience and skills on projects
  • Contribute to research topic ideas and help write research study questions
  • Provide patient perspective to study design
  • Helping researchers communicate technical study results in a way that is more meaningful for patients and families

To find out more and join, visit PARTNERS. 
 
Live Yes! INSIGHTS

By giving us 10 minutes, you become part of a force that will change the lives of the more than 54 million people with arthritis. Your voice matters.

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    Proud Partners of the Arthritis Foundation make an annual commitment to directly support the Foundation’s mission.

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Help millions of people live with less pain and fund groundbreaking research to discover a cure for this devastating disease. Please, make your urgently-needed donation to the Arthritis Foundation now!

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Become an Arthritis Foundation member today for just $20. You'll receive a year's worth of Arthritis Today magazine, access to helpful tools, resources, and more.

Make a Honor or Memorial Gift

Honor a loved one with a meaningful donation to the Arthritis Foundation. We'll send a handwritten card to the honoree or their family notifying them of your thoughtful gift.

Volunteer


Volunteer Opportunities

The Arthritis Foundation is focused on finding a cure and championing the fight against arthritis with life-changing information, advocacy, science and community. We can only achieve these goals with your help. Strong, outspoken and engaged volunteers will help us conquer arthritis. By getting involved, you become a leader in our organization and help make a difference in the lives of millions. Join us and become a Champion of Yes.


More About Volunteering

Live Yes! INSIGHTS


Give Just 10 Minutes.

Tell us what matters most to you. Change the future of arthritis.

By taking part in the Live Yes! INSIGHTS assessment, you’ll be among those changing lives today and changing the future of arthritis, for yourself and for 54 million others. And all it takes is just 10 minutes.

Your shared experiences will help:

- Lead to more effective treatments and outcomes
- Develop programs to meet the needs of you and your community
- Shape a powerful agenda that fights for you

Now is the time to make your voice count, for yourself and the entire arthritis community. 

Currently this program is for the adult arthritis community.  Since the needs of the juvenile arthritis (JA) community are unique, we are currently working with experts to develop a customized experience for JA families. 


How are you changing the future?

By sharing your experience, you’re showing decision-makers the realities of living with arthritis, paving the way for change. You’re helping break down barriers to care, inform research and create resources that make a difference in people’s lives, including your own.

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Partner


Meet Our Partners

As a partner, you will help the Arthritis Foundation provide life-changing resources, science, advocacy and community connections for people with arthritis, the nations leading cause of disability. Join us today and help lead the way as a Champion of Yes.

Trailblazer

Our Trailblazers are committed partners ready to lead the way, take action and fight for everyday victories. They contribute $2,000,000 to $2,749,000

Visionary

Our Visionary partners help us plan for a future that includes a cure for arthritis. These inspired and inventive champions have contributed $1,500,00 to $1,999,999.

Pioneer

Our Pioneers are always ready to explore and find new weapons in the fight against arthritis. They contribute $1,000,000 to $1,499,999.

Pacesetter

Our Pacesetters ensure that we can chart the course for a cure for those who live with arthritis. They contribute $500,000 to $999,000.

Signature

Our Signature partners make their mark by helping us identify new and meaningful resources for people with arthritis. They contribute $250,000 to $499,999.

Supporting

Our Supporting partners are active champions who provide encouragement and assistance to the arthritis community. They contribute $100,000 to $249,999.

More About Partnerships