PARTNERS

Join patients, care providers, researchers and physicians in PARTNERS, and help improve the lives of children with rheumatic diseases and their families.

What is PARTNERS?

PARTNERS formally links childhood arthritis and lupus patients, family members, the CARRA network, the Lupus Foundation of America, the Arthritis Foundation and a quality improvement network called PR-COIN. Our vision is to improve the lives of children with rheumatic diseases through research that matters to YOU. PARTNERS is a patient-powered research network funded by PCORI.

  • CARRA: The Childhood Arthritis and Rheumatology Research Alliance was created to ease research aimed at finding the cause and cure for childhood rheumatic diseases. Nearly every pediatric rheumatologist in North America is a member of CARRA. CARRA's vision is to have every patient participate in research in some way and PARTNERS helps bring this vision to reality.
  • PR-COIN: The Pediatric Rheumatology Care and Outcomes Improvement Network is a network of rheumatologists, nurses, therapists, social workers and support staff at rheumatology centers who in partnership with families are all working together to transform how care is delivered to children with JIA. The aim of PR-COIN is to develop and evaluate specific disease management strategies to improve the care of children with JIA and to determine how best to incorporate these strategies into clinical practice. PR-COIN is creating a sustainable network that uses a registry database to measure performance, learn more about the health status of JIA patients as well as to inform future improvement projects.
  • Lupus Foundation of America: Founded in 1977, the Lupus Foundation of America, Inc., is devoted to solving the mystery of Lupus, one of the world's cruelest, most unpredictable, and devasting diseases, while giving caring support to those who suffer from its brutal impact. Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.

Understanding PARTNERS

This Prezi has been created by engaged family members of patients and provides a brief, interactive explanation of the importance of the continuing involvement of people with rheumatic diseases and their families in the process of research. It also contains an overview of the PARTNERS Patient Powered Research Network (PPRN) and affiliated organizations.

Join PARTNERS

You will have the power to influence the research conducted and supported by PARTNERS.

Join PARTNERS and make a difference. EVERYONE with a connection to juvenile idiopathic arthritis (JIA) is encouraged to join – those with JIA, parents or guardians of children with JIA, family members or friends, healthcare providers or researchers. It’s okay if you don’t know anything about research. We need people from a variety of communities. No matter what kind of work you do, your education or background, we need YOU.

When you sign up, you may be asked to do the following:

  • Take online surveys -- about your experiences, medications used to treat JIA and other vital topics.
  • Serve on a PARTNERS committee – focusing on a particular project or need, for example.
  • Contribute to a project -- based on your skills, experiences and interests.
  • Provide ideas for research topics -- to help us decide which research studies to support.
  • Participate in a research study – such as an online or in-person focus group.

 
Registration is Easy! Just click here!

This is to ensure you understand your participation is related to research. Some of the questions in the PARTNERS registration are about your connection to JIA and living with the disease. These are considered protected health information (PHI). This type of information helps us connect you with PARTNERS activities you are interested in. We encourage you to review the Transparency Policy which describes how the data you provide is used and protected. which describes how the data you provide is used and protected.

If you have questions, review the PARTNERS Frequently Asked Questions or contact PARTNERS at info@partnerspprn.org.

I Want to Contribute
I Need Help
  • Donate

    Donate

    Every gift to the Arthritis Foundation will help people with arthritis across the U.S. live their best life.

  • Volunteer

    Volunteer

    Join us and become a Champion of Yes. There are many volunteer opportunities available.

  • Live Yes! INSIGHTS

    Live Yes! INSIGHTS

    Take part to be among those changing lives today and changing the future of arthritis.

  • Partner

    Partner

    Proud Partners of the Arthritis Foundation make an annual commitment to directly support the Foundation’s mission.

Donate


Make a Donation

Help millions of people live with less pain and fund groundbreaking research to discover a cure for this devastating disease. Please, make your urgently-needed donation to the Arthritis Foundation now!

Become a Member

Become an Arthritis Foundation member today for just $20. You'll receive a year's worth of Arthritis Today magazine, access to helpful tools, resources, and more.

Make a Honor or Memorial Gift

Honor a loved one with a meaningful donation to the Arthritis Foundation. We'll send a handwritten card to the honoree or their family notifying them of your thoughtful gift.

Volunteer


Volunteer Opportunities

The Arthritis Foundation is focused on finding a cure and championing the fight against arthritis with life-changing information, advocacy, science and community. We can only achieve these goals with your help. Strong, outspoken and engaged volunteers will help us conquer arthritis. By getting involved, you become a leader in our organization and help make a difference in the lives of millions. Join us and become a Champion of Yes.


More About Volunteering

Live Yes! INSIGHTS


Give Just 10 Minutes.

Tell us what matters most to you. Change the future of arthritis.

By taking part in the Live Yes! INSIGHTS assessment, you’ll be among those changing lives today and changing the future of arthritis, for yourself and for 54 million others. And all it takes is just 10 minutes.

Your shared experiences will help:

- Lead to more effective treatments and outcomes
- Develop programs to meet the needs of you and your community
- Shape a powerful agenda that fights for you

Now is the time to make your voice count, for yourself and the entire arthritis community. 

Currently this program is for the adult arthritis community.  Since the needs of the juvenile arthritis (JA) community are unique, we are currently working with experts to develop a customized experience for JA families. 


How are you changing the future?

By sharing your experience, you’re showing decision-makers the realities of living with arthritis, paving the way for change. You’re helping break down barriers to care, inform research and create resources that make a difference in people’s lives, including your own.

Get Started

 

Partner


Meet Our Partners

As a partner, you will help the Arthritis Foundation provide life-changing resources, science, advocacy and community connections for people with arthritis, the nations leading cause of disability. Join us today and help lead the way as a Champion of Yes.

Trailblazer

Our Trailblazers are committed partners ready to lead the way, take action and fight for everyday victories. They contribute $2,000,000 to $2,749,000

Visionary

Our Visionary partners help us plan for a future that includes a cure for arthritis. These inspired and inventive champions have contributed $1,500,00 to $1,999,999.

Pioneer

Our Pioneers are always ready to explore and find new weapons in the fight against arthritis. They contribute $1,000,000 to $1,499,999.

Pacesetter

Our Pacesetters ensure that we can chart the course for a cure for those who live with arthritis. They contribute $500,000 to $999,000.

Signature

Our Signature partners make their mark by helping us identify new and meaningful resources for people with arthritis. They contribute $250,000 to $499,999.

Supporting

Our Supporting partners are active champions who provide encouragement and assistance to the arthritis community. They contribute $100,000 to $249,999.

More About Partnerships