Live Yes! INSIGHTS Assessment
Take part in our 10 minute assessment to be among those changing lives today and changing the future of arthritis, for yourself and for 54 million others.
What is the Live Yes! INSIGHTS Program?
The Live Yes! INSIGHTS assessment is a voluntary patient survey intended to track the arthritis experience, capturing it today and improving it tomorrow. Through this new, innovative program, the Arthritis Foundation is reaching out and listening to millions of people with arthritis. We are capturing real-time snapshots of the arthritis journey and finding out what matters most to patients.
Why your voice matters
Your participation will amplify our approach in shaping the future of arthritis care and treatment. Your shared experiences will help serve three distinct needs:
- Lead to more effective treatments and outcomes
- Develop programs to meet the needs of you and your community
- Shape a powerful agenda that fights for you
Give just 10 minutes
Change the future of arthritis.
By sharing your experience, you’re showing decision-makers the realities of living with arthritis, paving the way for change. You’re helping break down barriers to care, inform research and create resources that make a difference in people’s lives, including your own.Participate Now
Who can participate?
Currently, this program is for adults with arthritis. A separate survey that captures the unique needs and experiences of the juvenile arthritis (JA) community is in development.
What information will I be giving?
The questionnaire is designed to capture responses directly from you about a symptom or some other important aspect of how arthritis affects your fuction and mobility.
Will filling it out take long?
Answering the questions takes most people about 10 to 15 minutes; some finish more quickly, and some take more time.
Will my information be private?
Your information will be stored in a secure database maintained by the Arthritis Foundation’s vendor, Qualtrics. It is protected at the same level as banking data. The Arthritis Foundation will never share or allow access to data that is tied to your name or identifying information. Data will only be shared in big batches, called “aggregate” data, with no names, addresses, emails or other personal information connected.
Do I take the survey only once?
You can take the survey as often as you like. You will receive email reminders to take it again so you can capture your arthritis experience at different points in time.
What will happen to the data you gather?
The aggregated results will show a composite picture of life with arthritis, the needs of people who are living with the disease and what their priorities are. The Arthritis Foundation will use the data and share it with our research and innovation partners to conduct research and increase our knowledge about arthritis.
Can I share the survey with my community?
Yes, please do share it. The more people who take it, the more effective the outcome. [Give instructions for sharing. Advocacy placeholder for social sharing]
Share the following message and graphic on social media and in emails with the patients in your network. When you do, you act as an “influencer” helping us to grow our program and build robust data that can make a meaningful impact on our programs, resources, and legislative asks. Make sure to tag the Arthritis Foundation in your post! [Click to download graphics; provide sample posts]
For questions about the Live Yes! INSIGHTS Program or the Insights Assessment, please contact firstname.lastname@example.org.