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Share Your Experience With JA and Help Change Lives  

Take part in our research study to join those who are trying to help change children’s lives and the future of juvenile arthritis today for 300,000 families like yours.

JA INSIGHTS Report

JA Pain Disrupts Kids' Lives

More than a year’s worth of data paint a disturbing picture of how pain affects kids with juvenile arthritis. We’re taking action.

Read the Report
JA Pain Disrupts Kids' Lives

What is the JA INSIGHTS program? 
This research assessment tool uniquely captures the experiences and challenges of what everyday life is like living with juvenile arthritis (JA) and related childhood rheumatic conditions. Input from parents of children ages 5-17 demonstrates the impact of JA —and helps the Arthritis Foundation plan and develop new resources and customized programming. By participating in this research, you can contribute to knowledge that may help your child better navigate life with arthritis and contribute to a brighter future for all JA kids. 

Why your voice matters 
The Arthritis Foundation looks at treatments for JA differently, because dealing with JA is different for kids and their families. You have so many more challenges to tackle. Your input will help: 

  • Amplify our work to improve the future of arthritis care and treatments for children. 
  • Develop programs that meet needs of the JA community. 
  • Shape a powerful advocacy agenda that fights for you and your family. 

Help change the future of JA.  By sharing your experience, you’re showing decision-makers the realities of living with JA, paving the way for new possibilities. Your responses inform the Arthritis Foundation’s strategy to break down barriers to care, inform research and create resources that may make a difference in your own child’s life and for many more other children. 

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Answers to Your Questions About JA INSIGHTS

What is the Live Yes! JA INSIGHTS research assessment?

It is a way to collect and keep track of the arthritis community’s patient-reported outcomes.

What is a patient-reported outcome?

A patient-reported outcome is a response directly from you to a question about a symptom or some other important aspect of your child’s overall physical, social and emotional health. For example, it may be about how frequently your child has felt pain in the last week.

Who can participate?

Currently, this program is for parents/legal guardians of children/teens, ages 5-17, with juvenile arthritis or a related pediatric rheumatic disease.

What kinds of questions will be asked?

The questionnaire is designed to capture information about what you, your family and your child’s experiences are with juvenile arthritis or childhood rheumatic disease and how it affects your child’s physical function and mobility, pain, social life.  To help us better understand the potential needs of JA parents/guardians, there are also a few questions about your own quality of life as a parent of a child with JA or childhood rheumatic disease.

Will my information be private?

Your information will be stored in a secure database maintained by the Arthritis Foundation’s vendor, Qualtrics. It is protected at the same level as banking data. The Arthritis Foundation will never share or allow access to data that is tied to your name or identifying information. Data will only be shared in big batches, called “aggregate” data, with no names, addresses, emails or other personal information connected. 

How will the Arthritis Foundation use my information?

The aggregated results will show a composite picture of children’s lives with juvenile arthritis, their needs and what their priorities are. The Arthritis Foundation only shares de-identified aggregate data with partners to enhance research and increase knowledge about arthritis. Unlike other programs that collect patient-reported data, information collected through JA INSIGHTS may immediately influence the development of resources and programs for kids with juvenile arthritis and their families through the Live Yes! Arthritis Network.

How long does it take to fill out the study?

 Answering all questions takes most people about 10 to 15 minutes; some finish more quickly, and some take more time. 

Do I take the survey only once?

If you decide to participate, you can take the survey as often as you like.  If you join the INSIGHTS program, you will receive periodic email reminders to take it again so you can capture your child’s experience at different points in time. The frequency of these emails may vary but is estimated to average about one email per quarter.

Where can I take the JA INSIGHTS assessment?

Participate now in the JA INSIGHTS research study. 

Can I share the survey with my community?

 Yes, please do share it. The more people who take it, the more effective the outcome. 

What are the benefits of a longitudinal study like JA INSIGHTS?

Longitudinal studies help establish the correct order of events, identify changes over time, and provide insight into cause-and-effect relationships. This allows the Arthritis Foundation to analyze the data, identify trends, changes over a period and provide aggregate data summaries over time.

How can I learn more about Juvenile Arthritis?

Want to learn more about living with juvenile arthritis? While no two children with juvenile arthritis experience the exact same symptoms or struggles, the Arthritis Foundation has programs and resources to address the needs and wants of your child and family. You are not alone.
Questions?

For questions about the Live Yes! INSIGHTS program or the INSIGHTS assessment.

Contact Us

 


 

 

Thank you to our sponsor for their support of the JA INSIGHTS program.

Participate Now: INSIGHTS
Adults with Arthritis can Participate Too

Participate Now: INSIGHTS

Your insights will lead to more effective care for adults living with arthritis or a related rheumatic disease, develop programs that meet your community’s needs and shape a powerful agenda that fights for you.

Participate Now
Stay in the Know. Live in the Yes.

Get involved with the arthritis community. Tell us a little about yourself and, based on your interests, you’ll receive emails packed with the latest information and resources to live your best life and connect with others.

 
I Want to Contribute
I Need Help
  • Donate

    Donate

    Every gift to the Arthritis Foundation will help people with arthritis across the U.S. live their best life.

  • Volunteer

    Volunteer

    Join us and become a Champion of Yes. There are many volunteer opportunities available.

  • Live Yes! INSIGHTS

    Live Yes! INSIGHTS

    Take part to be among those changing lives today and changing the future of arthritis.

  • Partner

    Partner

    Proud Partners of the Arthritis Foundation make an annual commitment to directly support the Foundation’s mission.

Donate

Ways to Give

Every gift to the Arthritis Foundation will help people with arthritis across the U.S. live their best life. Whether it is supporting cutting-edge research, 24/7 access to one-on-one support, resources and tools for daily living, and more, your gift will be life-changing.

Make a Donation

Help millions of people live with less pain and fund groundbreaking research to discover a cure for this devastating disease. Please, make your urgently-needed donation to the Arthritis Foundation now!

Become a Member

Become an Arthritis Foundation member today for just $20 and you'll receive access to helpful tools..... and more. 

Make a Honor or Memorial Gift

Honor a loved one with a meaningful donation to the Arthritis Foundation. We'll send a handwritten card to the honoree or their family notifying them of your thoughtful gift.

Gift Planning

I want information on ways to remember the AF in my will, trust or other financial planning vehicles.
 

Other Ways to Give

Volunteer

Volunteer Opportunities

The Arthritis Foundation is focused on finding a cure and championing the fight against arthritis with life-changing information, advocacy, science and community. We can only achieve these goals with your help. Strong, outspoken and engaged volunteers will help us conquer arthritis. By getting involved, you become a leader in our organization and help make a difference in the lives of millions. Join us and become a Champion of Yes.

Become a Volunteer

More About Volunteering

Live Yes! INSIGHTS

Give Just 10 Minutes.

Tell us what matters most to you. Change the future of arthritis.

By taking part in the Live Yes! INSIGHTS assessment, you’ll be among those changing lives today and changing the future of arthritis, for yourself and for 54 million others. And all it takes is just 10 minutes.

Your shared experiences will help:

- Lead to more effective treatments and outcomes
- Develop programs to meet the needs of you and your community
- Shape a powerful agenda that fights for you

Now is the time to make your voice count, for yourself and the entire arthritis community. 

Currently this program is for the adult arthritis community.  Since the needs of the juvenile arthritis (JA) community are unique, we are currently working with experts to develop a customized experience for JA families. 

How are you changing the future?

By sharing your experience, you’re showing decision-makers the realities of living with arthritis, paving the way for change. You’re helping break down barriers to care, inform research and create resources that make a difference in people’s lives, including your own.

Get Started

Partner

Meet Our Partners

As a partner, you will help the Arthritis Foundation provide life-changing resources, science, advocacy and community connections for people with arthritis, the nations leading cause of disability. Join us today and help lead the way as a Champion of Yes.

Trailblazer

Our Trailblazers are committed partners ready to lead the way, take action and fight for everyday victories. They contribute $2,000,000 to $2,749,000

Visionary

Our Visionary partners help us plan for a future that includes a cure for arthritis. These inspired and inventive champions have contributed $1,500,00 to $1,999,999.

Pioneer

Our Pioneers are always ready to explore and find new weapons in the fight against arthritis. They contribute $1,000,000 to $1,499,999.

Pacesetter

Our Pacesetters ensure that we can chart the course for a cure for those who live with arthritis. They contribute $500,000 to $999,000.

Signature

Our Signature partners make their mark by helping us identify new and meaningful resources for people with arthritis. They contribute $250,000 to $499,999.

Supporting

Our Supporting partners are active champions who provide encouragement and assistance to the arthritis community. They contribute $100,000 to $249,999.

More About Partnerships