Attend the Externally-Led JIA Patient-Focused Drug Development Meeting
The world’s largest network of arthritis patients – the Arthritis Foundation, and the largest network of pediatric rheumatologists – the Childhood Arthritis and Rheumatology Research Alliance (CARRA) are hosting the Juvenile Idiopathic Arthritis Patient-Focused Drug Development (PFDD) meeting. This meeting, driven by our patients and caregivers, will provide the U.S. Food and Drug Administration (FDA) and industry with input directly from patients on how this disease affects their lives, experiences with current treatments, and needs for newer and better treatments.
The meeting takes place in Washington, D.C. on August 2, 2018 from 9am to 3:15pm ET and will be held at the Grand Hyatt Washington.
If you are a parent, caregiver or patient with juvenile idiopathic arthritis (JIA) you are invited and encouraged to participate in this meeting. This meeting will give you the opportunity to share information about the impact of JIA on daily life, the symptoms that are most challenging, experiences with currently available treatments and the need for new and different treatments. Representatives from the FDA and other regulatory agencies, drug developers, health care providers, academic researchers will be listening.
You are encouraged to join this meeting and can do so either in-person or via webinar.
If you are a patient, parent or caregiver wishing to attend in-person, please read the following:
- We are looking for a diverse group of JIA parents and patients including parents of children with JIA diagnosed at any age, and individuals with JIA who are 13 years of age or older. (Children under 18 years of age who plan to attend in person will need the permission of or be accompanied by a parent or authorized caregiver. Free childcare is available for children up to age 18.)
- The meeting will take place prior to the start of the Arthritis Foundation JA Conference in Washington, DC, at the same hotel where the conference is being held.
- Participants should plan to arrive on Wednesday, August 1, or in time for the start of the meeting on August 2 at 9:00 a.m. ET.
- Child care (including lunch) will be provided during the meeting on August 2 at no cost.
- Free lunch will be provided to meeting attendees on August 2.
- All participants will receive pre-meeting preparation and will be asked to participate in at least one conference call or webinar before the meeting.
- Financial assistance is available for those who qualify.
If you and/or your child are interested in this unique opportunity to make your voices heard, please fill out this quick questionnaire. We’ll see you in Washington!
You can also attend via webinar!