What is PCORI and PCORnet?

See why we rely on PCORI and PCORnet to improve the quality of life and longevity of rheumatic disease patients. 

 
PCORI - Formed in 2010 through the Affordable Care Act, PCORI (Patient-Centered Outcomes Research Institute) is an independent, non-profit health research organization that funds and shares findings correlating the effectiveness of the various choices patients have when selecting their care. PCORI’s vision is to provide the patient with the information they need to make decisions that bring about their desired health outcomes. PCORI funds comparative effectiveness research (CER) and PCORnet.  
 
PCORnet (National Patient-Centered Clinical Research Network) is a national patient data network that collects PCORnet is to improve the nation’s capacity to conduct comparative effectiveness research (CER). PCORnet brings together patients, care providers and health systems to improve healthcare and advance medical knowledge. With patients and researchers working -by-sidePCORnet.

Comparative Effectiveness Research

 Comparative Effectiveness Research gives hope to patients seeking effective treatments. Large sets of patient data help identify the most effective methods.

How will PCORnet improve the nation’s ability to do CER?

Suppose a researcher and would like to compare two lupus treatments. How will you find patients to ask if they would like to participate in the study? With PCORnet, researchers will be able to search the identity-protected data to find the patients you are looking for.
For more information, visit pcornet.org.

 

Why is CER important to patients?

Suppose your coffee pot broke and you needed to replace it. You can fill libraries with easy to find and understand information comparing different models of coffee pots.

  • What are your needs (desired outcomes) in a coffee pot?
  • Do you want something that keeps coffee piping hot?
  • Do you need to brew many cups at a time or single-serve?
  • How quickly do you want the coffee to brew?
  • Are you a connoisseur and always want the highest quality? No matter how long it takes?

The consumer has access to a wealth of information needed to select a coffee pot, but in the healthcare world of choosing a coffee pot, the patient would only be able to ask their doctor for advice on which coffee pot to select.

  • What if what’s important to your doctor in a coffee pot is not relevant to you?
  • Why is there so much information available in about something as trivial as a coffee pot and nothing available when making the choice about which medication to use?

 

Can We Use CER to Find the Best Care for Kids with Lupus?

What if we could find the best care for children with lupus just by studying how they do with routine care from their own doctor? Learn more about finding the best care for children with lupus.

 

What Does Research Mean to You?

Parents and patients were asked, “What is one word that comes to mind when you hear the word “research”? The larger the word, the more times it was mentioned. Over 25% of parents replied with the word “hope.” This is a powerful message as to the importance of research to those dealing with these diseases every single day.

Live Yes! INSIGHTS

By giving us 10 minutes, you become part of a force that will change the lives of the more than 54 million people with arthritis. Your voice matters.

I Want to Contribute
I Need Help
  • Donate

    Donate

    Every gift to the Arthritis Foundation will help people with arthritis across the U.S. live their best life.

  • Volunteer

    Volunteer

    Join us and become a Champion of Yes. There are many volunteer opportunities available.

  • Live Yes! INSIGHTS

    Live Yes! INSIGHTS

    Take part to be among those changing lives today and changing the future of arthritis.

  • Partner

    Partner

    Proud Partners of the Arthritis Foundation make an annual commitment to directly support the Foundation’s mission.

Donate


Make a Donation

Help millions of people live with less pain and fund groundbreaking research to discover a cure for this devastating disease. Please, make your urgently-needed donation to the Arthritis Foundation now!

Become a Member

Become an Arthritis Foundation member today for just $20. You'll receive a year's worth of Arthritis Today magazine, access to helpful tools, resources, and more.

Make a Honor or Memorial Gift

Honor a loved one with a meaningful donation to the Arthritis Foundation. We'll send a handwritten card to the honoree or their family notifying them of your thoughtful gift.

Volunteer


Volunteer Opportunities

The Arthritis Foundation is focused on finding a cure and championing the fight against arthritis with life-changing information, advocacy, science and community. We can only achieve these goals with your help. Strong, outspoken and engaged volunteers will help us conquer arthritis. By getting involved, you become a leader in our organization and help make a difference in the lives of millions. Join us and become a Champion of Yes.


More About Volunteering

Live Yes! INSIGHTS


Give Just 10 Minutes.

Tell us what matters most to you. Change the future of arthritis.

By taking part in the Live Yes! INSIGHTS assessment, you’ll be among those changing lives today and changing the future of arthritis, for yourself and for 54 million others. And all it takes is just 10 minutes.

Your shared experiences will help:

- Lead to more effective treatments and outcomes
- Develop programs to meet the needs of you and your community
- Shape a powerful agenda that fights for you

Now is the time to make your voice count, for yourself and the entire arthritis community. 

Currently this program is for the adult arthritis community.  Since the needs of the juvenile arthritis (JA) community are unique, we are currently working with experts to develop a customized experience for JA families. 


How are you changing the future?

By sharing your experience, you’re showing decision-makers the realities of living with arthritis, paving the way for change. You’re helping break down barriers to care, inform research and create resources that make a difference in people’s lives, including your own.

Get Started

 

Partner


Meet Our Partners

As a partner, you will help the Arthritis Foundation provide life-changing resources, science, advocacy and community connections for people with arthritis, the nations leading cause of disability. Join us today and help lead the way as a Champion of Yes.

Trailblazer

Our Trailblazers are committed partners ready to lead the way, take action and fight for everyday victories. They contribute $2,000,000 to $2,749,000

Visionary

Our Visionary partners help us plan for a future that includes a cure for arthritis. These inspired and inventive champions have contributed $1,500,00 to $1,999,999.

Pioneer

Our Pioneers are always ready to explore and find new weapons in the fight against arthritis. They contribute $1,000,000 to $1,499,999.

Pacesetter

Our Pacesetters ensure that we can chart the course for a cure for those who live with arthritis. They contribute $500,000 to $999,000.

Signature

Our Signature partners make their mark by helping us identify new and meaningful resources for people with arthritis. They contribute $250,000 to $499,999.

Supporting

Our Supporting partners are active champions who provide encouragement and assistance to the arthritis community. They contribute $100,000 to $249,999.

More About Partnerships