Participate in Science
Getting involved in science in one form or another allows you and your loved ones to help scientists find better treatments for others in the future. Clinical trials and disease registries are part of clinical research and are at the heart scientific discovery.
You have the power to influence the research conducted by scientists in other ways too, like taking surveys or serving on committees. Below are current opportunities:
Everyone with a connection to juvenile idiopathic arthritis (JIA) is encouraged to join PARTNERS – a group of organizations, patients and parents dedicated to improving the lives of children with rheumatic diseases through research. We want to know what research matters to you, and by joining, you will be able to tell us through surveys and other activities.
Clinical Trial Information from the National Institutes of Health (NIH).
Now more than ever, patients should be involved with research related to their disease. Without patient or caregiver participation, research cannot advance toward new treatments and a cure. Thanks to a two-year Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award, the Arthritis Foundation has created a series of educational videos to help make patients and families aware of the opportunities available through involvement in research.
The training, designed to answer your questions about taking part in research, can be viewed here (to be viewed in order):
- Introduction – Living With Chronic Disease: An overview of research projects with patient partners.
- Chapter 1 - Research as a Tool: Learn about the importance of patients/subjects, research partners and patient reported outcomes. Find out why patients should get involved in different parts of the research process.
- Chapter 2 - Joining Research as a Study Participant: Find out more about the different types of research, the rules that protect you as a subject, and the benefits of volunteering in a study.
- Chapter 3 – Joining Research as a Patient or Parent Partner: Learn how to be part of a “team research”, what it means for patients and how to get involved.
FNIH Biomarkers Consortium TARGET Biomarker Study to Identify Cardiovascular Risk in RA Patients