As an active kid, Bede was devastated when a juvenile arthritis diagnosis kept her from the activities she loves. Now, she’s learning to cope with her symptoms while keeping up with her classmates.
Once diagnosed with JIA, Bede’s doctors began the process of trying to make her better and finding a medicine that worked with her body. She received a monthly infusion that seemed to be help.
Bede’s swelling went down, and she was ecstatic about the success of her treatment. However, during one of many checkups, her doctors told her that while things were looking good, there was a 50 percent chance of a flare up in the future. A flare would result in another round of painful swelling and a major loss of movement. They also explained that these flares could happen every two to three years.
Bede loves being around her friends and is generally described as a major people person. Unfortunately, due to her arthritis symptoms, last year she had to stop attending school completely. While she has been able to remotely view her classes, it’s been very difficult for her to be away from her friends and classmates.