National Jingle Bell Run Honorees
Take a look at National Jingle Bell Run Honoree Maya M. as she shares her story.
National Youth Honoree
At the age of 11, I was diagnosed with Chronic Recurrent Multifocal Osteomyelitis(CRMO), a rare bone condition classified under the realm of Arthritis. I am currently 15, and living a beautiful life, despite living with a diagnosis. For the first few years after I was diagnosed, I felt very alone, due to the rarity of CRMO(1;1,000,000). In the past year, I was introduced to the Arthritis Foundation, which has played a great role in my journey with CRMO. I am an advocate and Junior Ambassador for the Foundation, which has allowed me to take control of my disease and advocate for myself and all people with a diagnosis. Throughout my journey, I have met amazing people that have helped me along the way. This includes Arthritis Foundation staff, and my fellow campers at JA camp. All of whom have made my experience with CRMO go much smoother. I have worked closely with the Arthritis Foundation, including advocating in DC, serving on the Walk to Cure Arthritis and Jingle Bell Run committees, and much more. I am very excited to take on this roll and use my position to amplify my voice and speak up for all people with JA & CRMO.
I love to share my story in a positive way, showing how it is possible to do everything thing that everyone else can do, even if you have Arthritis. It is important for everyone to know that kids get Arthritis, and kids with Arthritis are very strong!