The key to success in changing government policies and funding is through grassroots advocacy.
Arthritis Foundation Represented at FDA Hearing
The FDA held a hearing about acetaminophen. Pam Snow, a member of the Arthritis Foundation's Osteoarthritis Alliance, represented the Foundation. Read her remarks.
JA Registry Needed Now! We need your help!
Dear Arthritis Advocate,
The Arthritis Foundation has been advocating for many years for the creation of a juvenile arthritis registry. A JA registry would improve the care children with arthritis receive. It would help pediatric rheumatologists make better decisions about the type of medications our children need and it could serve as an early warning system if there are unintended side effects or outcomes of JA therapies. The Arthritis Foundation testified last month at the Food and Drug Administration (FDA) recommending that such a registry be established: http://www.arthritis.org/murphy.php
Now it is your chance to let the FDA know we want them to continue their commendable work in this area and make our dream a reality – the creation of a fully funded JA registry that would help our kids!
Click here to Download Letter
Or
Submit electronic comments to
Public Comment and Submission Form
All comments should be identified with: Docket No. FDA–2009–N–0145
Highlights from the 10th Annual Advocacy Summit
Check out Arthritis Advocates in action , Senator Kennedy's Advocacy Leadership Award acceptance speech and other highlights from the Advocacy Summit.
- Michigan family visits their Members of Congress. The Brian daughters, ages 12 and 9, "just want to find a cure." Watch them tell their story.
- IL high school senior attends Advocacy Summit for sixth time because "somebody has to have a voice." Kristen Hartman has juvenile arthritis and has missed 25 days of school simply because she could not get out of bed. She is proof that arthritis isn't an old person's disease and the passage of the Arthritis Prevention, Control and Cure Act will benefit 46 million Americans, 300,000 children.
2009 Fly-in For Healthcare Reform
Arthritis advocates are converging on Washington, D.C. to convey to Congress the critical need for healthcare reform. Learn more about the advocacy fly-in and meet the advocates who are attending.
What Do Advocates Do?
Advocate for improving the lives of people with arthritis.
To learn about the current, and major advocacy priorities for improving the lives of people with arthritis, follow these links to find background information and sample letters you can send to Congress urging action.
blog for Advocacy
Blog about your advocacy efforts and how to tell others more needs to be done to fight arthritis. How? It's easy! Just register on arthritis.org and join a community of bloggers talking about arthritis and other arthritis related topics. You can share your thoughts with others on being an Advocate, upload photos, participate in community forums, join support groups or start your own group.
