News from Central Ohio
Auto Show Volunteer and Car Lover Doesn’t Let Arthritis Take Her Out of the Driver’s Seat
Amber Veverka, 24, is an American Motors Corporation enthusiast who truly represents what the Classic Auto Show and Cruise-In is all about. Next month Amber will be showing off her 1970 AMX – a GT-style two-seater - for the first time. She’s been restoring the “muscle car” since 2006 when she was diagnosed with rheumatoid arthritis (RA) at age 17. Click here to read her story.
RA: Just Diagnosed
A diagnosis of rheumatoid arthritis (RA) can be unsettling and this educational program is being unveiled across the Great Lakes Region to help answer questions and improve the quality of life for those recently diagnosed. Helping patients become better informed empowers them as they continue on their RA journey. The program provides literature-based research and teaches self-management skills.
The program is free but registration is required due to limited space.
Contact Chris Parsons at 614-503-5589 or firstname.lastname@example.org for more information. RA Just Diagnosed July 20, 2013 9:30 a.m. – 12:30 p.m. Arthritis Foundation Office 3740 Ridge Mill Drive Hilliard, OH 43026
Spotlight on CARRA
A network helping to find a cure for childhood rheumatic diseases
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) consists of a network of over 350 pediatric rheumatologists working together across North America. Through collaboration, their research is focused on finding a cause and a cure for childhood rheumatic diseases, including juvenile idiopathic arthritis (JIA), lupus, and juvenile dermatomyositis. CARRA’s mission is “to prevent, treat, and cure rheumatic diseases in children and adolescents through fostering, facilitating, and conducting high-quality research.” You can support CARRA by agreeing to participate in research projects, including their registry. The purpose of this registry is to “(collect) information and (increase) the understanding of childhood rheumatic diseases” through a huge repository of data about children and their experiences with these diseases.
For more information on Friends of CARRA and how to get involved in your local area, click here.
For more information on CARRA and the research the alliance is conducting, visit their website.
Juvenile Arthritis Advocacy- Support Access to Pediatric Rheumatologists
Arthritis is a disabling and painful disease that affects 50 million Americans, including nearly 300,000 children. Nearly one in 250 children is living with a form of arthritis. Juvenile arthritis is one of the most common childhood diseases, affecting more children than cystic fibrosis and muscular dystrophy combined. Click here to read about the Arthritis Foundation's national priorities and learn about how you can become an advocate.
Susan Davis Named Division Vice President in Central Ohio
Susan Davis has joined the Arthritis Foundation, Great Lakes Region as Division Vice President, Central & Northwestern Ohio. Most recently serving as Development Director for The Homeless Families Foundation in Columbus, OH., Davis will be responsible for the planning and implementation of a comprehensive fundraising and volunteer development plan. Those critical funds will support Arthritis Foundation programs, services and arthritis research. Davis earned her MBA at Franklin University in Columbus and received a bachelor’s of science degree in Medical Technology from The Ohio State University. She can be reached at email@example.com or 614-503-5586.
Juvenile Arthritis Camps
JA Camps exist to provide education, networking and fun for kids and teens with arthritis, and in some cases, for the whole family! Campers take part in activities designed to help them increase self-confidence, improve arthritis self-management, and develop leadership and communication skills all while making new friends who share similar challenges. At our family camps, parents/caregivers and siblings get to join in the fun too!
Click here to find out more information about each program.
New Genes Identified in Juvenile Arthritis
More genetic links open the door to better diagnosis and treatment options. Click here to read more in this article of Arthritis Today magazine. Also, did you know you can receive Arthritis Today right on your Kindle? Click here to order the Kindle version.
Jingle in July!
Committ to running/walking a 5K for those living with arthritis. Click here and sign-up today to get the discounted rate on registration.
Watch for a new Arthritis Foundation JA online resource coming in July!
Special Thank You!
Thank you to our 2013 Region Arthritis Walk Sponsor, Abbvie. We are thankful for your commitment to the Arthritis Foundation and the 50 million people living with arthritis.