Let’s Speak Gout Research Approach
Let’s Speak Gout is based on joint research that offers new tools for doctors and patients to make effective gout management a priority.
To develop the Let’s Speak Gout program, the Arthritis Foundation and Takeda analyzed existing research conducted separately by the companies, as well published studies on doctor and patient perceptions of gout and doctor-patient communications over the last few years.
Then the Arthritis Foundation collaborated with Takeda, who sponsored new research to better identify effective language and approaches for doctor-patient gout communications. This research used an innovative bridge group approach. Patients with gout participated in focus groups to discuss their attitudes about and understanding of their condition and doctor/patient communication, while doctors observed behind one-way mirrors. The patients and observing doctors where separately asked for their perceptions and reactions to suggested words and phrases that would improve communication. A new group of doctors participated in focus groups about gout and its management, while a new gout patient group observed behind one-way mirrors. These doctors and gout patients were also asked for their perceptions and reactions to suggested words and phrases that would improve communication.
Insights gained from this research were synthesized with the prior research to develop the Let’s Speak Gout tools.
Let’s Speak Gout Research Findings
Let’s Speak Gout findings for more effective doctor/patient discussions about gout include:
- Doctors and patients do not currently share the same definitions for effective gout treatment. They need to establish common goals for number of attacks and for uric acid level, then regularly screen and track progress towards those goals.
- Patients and doctors overemphasize the dietary component of gout and often overlook the larger genetic component, leaving patients feeling guilty and potentially less honest in discussions with their doctors.
- Patients and doctors focus on treating the short-term pain of gout attacks, and don’t always address the long-term consequences and potential damage of untreated gout.
- There are specific ways to shift the tone and content of HCP/patient discussions about gout to yield more effective interactions and better patient outcomes.
The Let’s Speak Gout resources aim to support and motivate doctors and patients with gout to more effectively communicate and better manage the disease.