News From West Virginia
Raising Arthritis Awareness in West Virginia- Event Gathered Community Leaders to Learn More About Arthritis
Sixty-five people attended “Moving Closer to a Cure: An Evening with the Arthritis Foundation held May 30, 2013 in Charleston, WV. Speakers included John Hardin, M.D., Shelly Kafka, M.D., and Kirsten Smith. Julie Warden, Mrs. West Virginia International, greeted guests and served as Mistress of Ceremonies for the evening. Warden, who has rheumatoid arthritis, has made arthritis awareness her pageant platform issue. Click here to read more about the event and to see photos from the night.
West Virginians to Make a Difference at Juvenile Arthritis Conference
Families in West Virginia are particularly challenged when it comes to caring for children with juvenile arthritis (JA). The state is one of 11 with no pediatric rheumatologist. To raise awareness and make a difference in their state, families are getting involved.
Several West Virginians will travel to California to attend the JA Conference on July 18-21, 2013 in Anaheim. Click here to learn more about the families attending the JA Conference.
Keegan Brewster: A West Virginia Face of Arthritis
Keegan Brewster, 21, of Charleston, is a new office volunteer for the West Virginia Branch of the Arthritis Foundation. Brewster, who was diagnosed with juvenile rheumatoid arthritis (JRA) at 14 months old, has faced many challenges living daily with arthritis. Click here to read about her journey with arthritis and how she is giving back.
Juvenile Arthritis Advocacy- Support Access to Pediatric Rheumatologists
Arthritis is a disabling and painful disease that affects 50 million Americans, including nearly 300,000 children. Nearly one in 250 children is living with a form of arthritis. Juvenile arthritis is one of the most common childhood diseases, affecting more children than cystic fibrosis and muscular dystrophy combined. Click here to read about the Arthritis Foundation's national priorities and learn about how you can become an advocate.
Spotlight on CARRA
A network helping to find a cure for childhood rheumatic diseases.
The Childhood Arthritis and Rheumatology Research Alliance (or CARRA) consists of a network of over 350 pediatric rheumatologists working together across North America. Through collaboration, their research is focused on finding a cause and a cure for childhood rheumatic diseases, including juvenile idiopathic arthritis (JIA), lupus, and juvenile dermatomyositis. CARRA’s mission is “to prevent, treat, and cure rheumatic diseases in children and adolescents through fostering, facilitating, and conducting high-quality research.” You can support CARRA by agreeing to participate in research projects, including their registry. The purpose of this registry is to “(collect) information and (increase) the understanding of childhood rheumatic diseases” through a huge repository of data about children and their experiences with these diseases.
For more information on Friends of CARRA and how to get involved in your local area, click here.
For more information on CARRA and the research the alliance is conducting, visit their website.
Juvenile Arthritis Camps
JA Camps exist to provide education, networking and fun for kids and teens with arthritis, and in some cases, for the whole family! Campers take part in activities designed to help them increase self-confidence, improve arthritis self-management, and develop leadership and communication skills all while making new friends who share similar challenges. At our family camps, parents/caregivers and siblings get to join in the fun too!
Click here to find out more information about each program.
New Genes Identified in Juvenile Arthritis
More genetic links open the door to better diagnosis and treatment options. Click here to read more in this article of Arthritis Today magazine. Also, did you know you can receive Arthritis Today right on your Kindle? Click here to order the Kindle version of Arthritis Today.
Jingle in July!
Committ to running/walking a 5K for those living with arthritis. Click here and sign-up today to get the discounted rate on registration.
Watch for a new Arthritis Foundation JA online resource coming in July!