Juvenile Arthritis

 

Kids Get Arthritis Too

If you or someone you love has juvenile arthritis (JA) — you have come to the right place. The Arthritis Foundation, Great West Region is here to help by offering programs and resources to support kids with arthritis and their families. We host fun and educational events throughout the year, provide the most up-to-date information on disease management and arthritis research, and facilitate connections with other JA families.

Juvenile arthritis resources:

Learn more about juvenile arthritis:

 


 

JA Power Pack

power pack logoA diagnosis of juvenile arthritis can turn life upside down and make you feel powerless. You may not know what to expect, what treatment options are available or what to do. You may be worried and have a lot of questions.

The Arthritis Foundation understands and cares. That’s why we offer our JA Power Pack – a toolkit with useful information and tools to assist newly-diagnosed children and teens, as well as their parents. These resources were designed to give you and your family the POWER to make living with JA easier.

Knowing what to expect and how to deal with it is the key to better living with JA. And our JA Power Pack will help get you started. Now the power is in your hands!

Register for your FREE JA Power Pack today! 
(For families living in Alaska, Northern California, Colorado, Idaho, Montana, Oregon, Utah, Washington, and Wyoming)

 

 

JA Transition Toolkit

Transition ToolkitYoung people with rheumatic diseases have to take on new responsibilities as they enter the world of adult medical care. The Arthritis Foundation Transition Toolkit is designed to help youth and their families develop the skills they need to successfully make the leap to independence.

Take a brief health care skills assessment and create a customized Transition Toolkit that meets YOUR needs. Or check out the resource library to learn more about: Communicating with your doctors, organizing your health care, going to college with arthritis, managing stress, eating well, and much more!

Create your transition toolkit at www.JAtransition.org

 

 

JA Family Programs

family programJA Family Programs are fun-filled days for the whole family! Kids and teens enjoy activities and games while parents participate in educational sessions facilitated by pediatric rheumatologists and other health professionals.  Educational sessions address topics such as disease management techniques, updates in medication and treatment, parent support, family dynamics, transition and school issues.

JA Family Programs offer the opportunity to meet other families who face similar challenges and to get your questions answered by a health professional in a relaxed, non-clinical setting.

California JA Family Day
Mill Valley Community Center
March 1, 2014

Colorado JA Family Day
National Jewish Health, Denver
Save the Date: October 25, 2014

Utah JA Family Day
Fall 2014
Information Coming Soon

Idaho JA Family Day
Fall 2014
Information Coming Soon

 

 

Parent to Parent Programs

JA FamiliesThe Arthritis Foundation supports parent-led networking events where families of children with JA can gather to share information and tips while kids get to know each other in a fun, social environment. One-on-one parent connections can also be facilitated by the Arthritis Foundation in more remote areas. Contact us if you are interested in meeting another parent/caregiver in your area, or to request information about Parent to Parent programs.

 

 

 

 

Teen Retreats

Teen Retreat

The Teen Retreat was started specifically for teens, ages 14-18 and in high school, with juvenile arthritis. The program seeks to give teens information on self-managing their arthritis at a time when independence, self-reliance and peer pressure become important parts of a teenager’s life. The Teen Retreat offers a safe environment for teenagers to get to know one another and grow individually as well. We hope that they will increase valuable life skills, such as utilizing public transportation, staying safe in a new city, and the value of connecting with other teenagers who understand personally the challenges that their peers work through daily. This discovery and personal growth will assist each of these teens in developing lifelong skills in many aspects of life, including self-management of their disease.

Teen Retreat
October 17-19, 2014
Nature Bridge, Golden Gate Recreation Area
Sausalito, CA
Learn more

 

 

Juvenile Arthritis Camps

JA Camps exist to provide education, networking and fun for kids and teens with arthritis, and in some cases, for the whole family! Campers take part in activities designed to help them increase self-confidence, improve arthritis self-management, and develop leadership and communication skills all while making new friends who share similar challenges. At our family camps, parents/caregivers and siblings get to join in the fun too!

Visit the JA Camp Event Pages below to learn more about each program.

 

campers

arctic logoCampARCTIC - Cooper Landing, AK
Kids with JA (ages 5-18) and one parent/guardian 
June 5 - 7, 2014
Register 

 

Camp MilagrosCamp Milagros - Livermore, CA
Watch the Camp Milagros Video 
Kids with JA ages 8-13
July 14-18, 2014  
Register or Volunteer

 

JA Camp circle

JA Camp - Estes Park, CO
Kids with JA ages 8 - 16
July 19-24, 2014
Register or Volunteer
 

 

KAT FISH camp

KAT-FISH Camp - Stanwood, WA
Kids with JA ages 0-18 and families
July 25-27, 2014  
Register or Volunteer

 

 

Camp JAM

Camp JAM - Canby, OR
Kids with JA ages 0-18 and families
August 8-10, 2014
Register or Volunteer

 

 

LimberlimbsCamp Limberlimbs - Gold Creek, MT
Kids with JA ages 6-17
September 19-21, 2014
Register or Volunteer

 

  

 

 

Advocacy: Powerful Voices for Change

teensJuvenile arthritis is a major health concern, yet many people are unaware that juvenile arthritis even exists. Kids with arthritis and their families each have a unique story to tell that can raise awareness about JA and impact policy decisions on a local and national level. The Arthritis Foundation can teach families how to use their voice to educate government officials, school nurses, teachers, health professionals about arthritis and its unacceptable impact.  

Learn more about our advocacy efforts.

 

 

 

AFamilies E-newsletter

AFamilies graphicAFamilies is the e-newsletter for kids, teens and young adults affected by juvenile arthritis, their families and all those who support them.  This e-newsletter presents stories, perspectives and resources from across the entire Great West Region.
       
Read current issue

 

 

Informative Brochures, Books & Resources

RAC book

Learn more about childhood rheumatic diseases, arthritis management techniques, school issues and more through the Arthritis Foundation’s print and online resources. Many of these items are free.  

Printed resources include:
        Arthritis in Children
        Juvenile Arthritis Back to School resources
        When Your Student Has Arthritis (a guide for teachers)
        Raising a Child with Arthritis (book)

 

 

 

Juvenile Arthritis: Disease Basics

Juvenile arthritis (JA) is an umbrella term used to describe the many autoimmune and inflammatory conditions that can develop in children ages 16 and younger. Learn more about the disease. 

 

Living with Juvenile Arthritis

Juvenile arthritis affects the whole family and there are many components to proper management of the disease. Read helpful articles about the different types of JA and how it’s diagnosed, possible causes of JA, the effect of JA on your joints and body, treatment options, medications, family life, school issues, the latest research and more!

 

Kids Get Arthritis Too (KGAT) Website

Check out our virtual community where youngsters can find information on juvenile arthritis and read stories about other children with the disease. Designed for three different age groups – kids (ages 6 to 9), tweens (ages 10 to 13) and teens (ages 14 to 18), the site enables them to learn about symptoms, treatments, doctor visits, growing up with JA and more!

 

Arthritis in the News

Finding a cure for arthritis starts with educating others that Kids Get Arthritis Too! Check out how the Arthritis Foundation, JA families, and their doctors are raising awareness about this serious and painful disease.

  • WanichekAllison Wanichek (pictured right) encourages students to raise awareness of Juvenile Arthritis: WEAR BLUE on May 2, 2014
  • Joy Ross shares her story and the impact of juvenile arthritis on her family with Real Simple Magazine
  • Dr. Sara Stern explains that arthritis hits more kids than diabetes and other childhood diseases combined in a interview with KSL

 

 

 



Don’t see what you need? Contact Andrea Aho about JA resources and opportunities to connect with other families across the Arthritis Foundation, Great West Region.

 

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