From
town to town, city to city, suburb to suburb across America, people are
gathering in groups large and small to discuss one specific topic: how arthritis
has affected their lives. There are
other support groups for people with challenges as diverse as recovering from a
divorce, coping with breast cancer or fighting an addiction.
And
most, like this one, provide participants with much more than an outlet for
complaining and dwelling on the negative aspects of their lives. There's growing evidence that support groups are actually good medicine,
providing physical and psychological benefits.
Support
groups work, maintains David Spiegel, MD, professor of psychiatry and behavioral
sciences and director of the Psychosocial Treatment Laboratory at the Stanford
University School of Medicine in Palo Alto, Calif. And he has much more than just anecdotal evidence to back up his claim.
Over
10 years ago, Dr. Spiegel did groundbreaking research on the health benefits of
social support in women with breast cancer.The results astounded him and changed the future direction of his
research.
"When
we followed up on the women later, it didn't surprise me to discover that the
support groups had helped them emotionally," he says. " Bu I was not prepared to find that attending the groups actually
improved the women's physical health. These
women lived an average of 18 months longer than women with breast cancer who
didn't attend the group. Something
about the intense social support the women received from the group seemed to
affect the way their bodies coped with the disease."
Since
that study, the evidence of a link between social support and physical health
has mounted. Dr. Spiegel hypothesizes about how involvement in a support group
might bring about physical improvement for someone with arthritis.
"One
way to thing about it is that arthritis causes a lot of secondary problems, like
pain, lack of function or depression, over and above primary problems, such as
joint destruction," he says. "Support
can't stop the physical joint destruction, but it can bolster people emotionally
so that they can better handle the secondary problems. Support seems to help people feel less overwhelmed and more in
control."
Kate
Lorig, RN, DrPH, educational director of the Stanford Arthritis Center and
developer of the Arthritis Self Help Course offered by the Arthritis Foundation
chapters throughout the nation, points to another beneficial aspect of support
groups. "We normally think of
support groups as a place to get support," she says. " But in talking with people, I hear over and over again that one of
the most gratifying aspects of attending a support group is the opportunity to
give help to others. For people
with chronic illness, maintaining roles in life becomes very difficult. Being able to help others returns some of this to them."
Donna
Huser agrees. "It feels good
to be able to say, 'I've overcome that stage' and be able to offer your
perspective to someone who can't yet see the light at the end of the
tunnel."
"
We've all come in crying at some point, or desperate, wondering if life is going
to be like this. Sometimes you're
the one offering encouragement; sometimes you're getting it."
And
then, there's the simple fact of just knowing you're not alone in your situation
that can be like a lifeline - especially when you have arthritis, which is so
often dismissed as mild or inconsequential. Such callous misunderstandings can be devastating to someone who'
battling invisible but debilitating pain without social validation of their
illness.
"You
start to think you're going crazy, " says Kathy.
"It's
good to come here and know there are other people who go through the same
problems you do, " adds Jeanie. That
feeling is echoed by all the other participants.
"Other
people often say, 'I know how you feel,' but in reality they don't," says
Frances. "Only someone who's
been through a bad flare or a difficult period with this disease can really know
how I feel."
Kathy
adds, "Even if you family and friends are supportive, they get tired of
hearing about it all the time. I
can air my frustrations freely here; I don't have to keep them all bottled
up."