News from Northeastern Ohio
Families of Children with Juvenile Arthritis Deal with Emotional Ups, Downs of Unpredictable Disease
Taylor Lucas, 10, was diagnosed with juvenile idiopathic arthritis in 2010 at age six and a half. Arthritis awareness for children can begin at school where the entire school community knows that a child like Taylor has arthritis. But the disease often is frustrating as family still has misconceptions about arthritis and too many people still describe arthritis as “just aches and pains.” Click here to learn more about Taylor and how she and her family are fighting against arthritis.
Spotlight on CARRA
A network helping to find a cure for childhood rheumatic diseases
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) consists of a network of over 350 pediatric rheumatologists working together across North America. Through collaboration, their research is focused on finding a cause and a cure for childhood rheumatic diseases, including juvenile idiopathic arthritis (JIA), lupus, and juvenile dermatomyositis. CARRA’s mission is “to prevent, treat, and cure rheumatic diseases in children and adolescents through fostering, facilitating, and conducting high-quality research.” You can support CARRA by agreeing to participate in research projects, including their registry. The purpose of this registry is to “(collect) information and (increase) the understanding of childhood rheumatic diseases” through a huge repository of data about children and their experiences with these diseases.
For more information on Friends of CARRA and how to get involved in your local area, click here.
For more information on CARRA and the research the alliance is conducting, visit their website.
Juvenile Arthritis Advocacy- Support Access to Pediatric Rheumatologists
Arthritis is a disabling and painful disease that affects 50 million Americans, including nearly 300,000 children. Nearly one in 250 children is living with a form of arthritis. Juvenile arthritis is one of the most common childhood diseases, affecting more children than cystic fibrosis and muscular dystrophy combined. Click here to read about the Arthritis Foundation's national priorities and learn about how you can become an advocate.
Juvenile Arthritis Camps
JA Camps exist to provide education, networking and fun for kids and teens with arthritis, and in some cases, for the whole family! Campers take part in activities designed to help them increase self-confidence, improve arthritis self-management, and develop leadership and communication skills all while making new friends who share similar challenges. At our family camps, parents/caregivers and siblings get to join in the fun too!
Click here to find out more information about each program.
New Genes Identified in Juvenile Arthritis
More genetic links open the door to better diagnosis and treatment options. Click here to read more in this article of Arthritis Today magazine. Also, did you know you can receive Arthritis Today right on your Kindle? Click here to order the Kindle version.
Jingle in July!
Join us to kick off the Jingle Bell Run at Jingle in July
Wednesday, July 24, 2013 from 5-8pm at Lilly Pulitzer, Legacy Village
Enjoy holiday themed cocktails, décor, gifts with purchase and more as we gear up for the big race!
Jingle Bell Run will be held on December 8, 2013 at Legacy Village!
10% of the day’s sales will be donated to the Arthritis Foundation, Great Lakes Region, Northeastern Ohio.
For more information or to RSVP, please call 216-285-2822 or email Alicia at email@example.com.
Watch for a new Arthritis Foundation JA online resource coming in July!
Special Thank You!
Thank you to our 2013 Region Athritis Walk Sponsor, Abbvie. We are thankful for your commitment to the Arthritis Foundation and the 50 million people living with arthritis.
Thank you to all of our sponsors and participants. Click here for a special message from the Arthritis Foundation, Northeastern Ohio!