If you or someone you love has juvenile arthritis (JA) — you have come to the right place. The Arthritis Foundation, Great West Region is here to help by offering programs and resources to support kids with arthritis and their families. We host fun and educational events throughout the year, provide the most up-to-date information on disease management and arthritis research, and facilitate connections with other JA families.
Juvenile arthritis resources:
- Power Pack
- Transition Kit
- Family Programs
- Parent to Parent Program
- Teen Retreat
- JA Camp
- National Conference
Learn more about juvenile arthritis:
- Juvenile Arthritis: Disease Basics
- Living with Juvenile Arthritis
- Juvenile Arthritis Brochures and Books
- Kids Get Arthritis Too (KGAT) website
- Arthritis in the News
A diagnosis of juvenile arthritis can turn life upside down and make you feel powerless. You may not know what to expect, what treatment options are available or what to do. You may be worried and have a lot of questions.
The Arthritis Foundation understands and cares. That’s why we offer our JA Power Pack – a toolkit with useful information and tools to assist newly-diagnosed children and teens, as well as their parents. These resources were designed to give you and your family the POWER to make living with JA easier.
Knowing what to expect and how to deal with it is the key to better living with JA. And our JA Power Pack will help get you started. Now the power is in your hands!
Register for your FREE JA Power Pack today!
(For families living in Alaska, Northern California, Colorado, Idaho, Montana, Oregon, Utah, Washington, and Wyoming)
Young people with rheumatic diseases have to take on new responsibilities as they enter the world of adult medical care. The Arthritis Foundation Transition Toolkit is designed to help youth and their families develop the skills they need to successfully make the leap to independence.
Take a brief health care skills assessment and create a customized Transition Toolkit that meets YOUR needs. Or check out the resource library to learn more about: Communicating with your doctors, organizing your health care, going to college with arthritis, managing stress, eating well, and much more!
Create your transition toolkit at www.JAtransition.org
JA Family Programs are fun-filled days for the whole family! Kids and teens enjoy activities and games while parents participate in educational sessions facilitated by pediatric rheumatologists and other health professionals. Educational sessions address topics such as disease management techniques, updates in medication and treatment, parent support, family dynamics, transition and school issues.
JA Family Programs offer the opportunity to meet other families who face similar challenges and to get your questions answered by a health professional in a relaxed, non-clinical setting.
California JA Family Day
Saturday, August 23, 2014
Sally Griffin Center
700 Jewel Avenue, Pacific Grove, CA 93950
10 AM – 12:30 PM
Lunch will be provided
Register at 831-594-1713 or firstname.lastname@example.org
Utah JA Family Day
Saturday, October 11, 2014
Loveland Living Planet Aquarium
12033 S Lone Peak Pkwy, Draper, Utah 84020
10 AM – 1:30 PM
Snacks and lunch will be provided
Colorado JA Family Day
National Jewish Health, Denver
Save the Date: October 25, 2014
Idaho JA Family Day
Information Coming Soon
The Arthritis Foundation supports parent-led networking events where families of children with JA can gather to share information and tips while kids get to know each other in a fun, social environment. One-on-one parent connections can also be facilitated by the Arthritis Foundation in more remote areas. Contact us if you are interested in meeting another parent/caregiver in your area, or to request information about Parent to Parent programs.
The Teen Retreat was started specifically for teens, ages 14-18 and in high school, with juvenile arthritis. The program seeks to give teens information on self-managing their arthritis at a time when independence, self-reliance and peer pressure become important parts of a teenager’s life. The Teen Retreat offers a safe environment for teenagers to get to know one another and grow individually as well. We hope that they will increase valuable life skills, such as utilizing public transportation, staying safe in a new city, and the value of connecting with other teenagers who understand personally the challenges that their peers work through daily. This discovery and personal growth will assist each of these teens in developing lifelong skills in many aspects of life, including self-management of their disease.
October 17-19, 2014
Nature Bridge, Golden Gate Recreation Area
JA Camps exist to provide education, networking and fun for kids and teens with arthritis, and in some cases, for the whole family! Campers take part in activities designed to help them increase self-confidence, improve arthritis self-management, and develop leadership and communication skills all while making new friends who share similar challenges. At our family camps, parents/caregivers and siblings get to join in the fun too!
Visit the JA Camp Event Pages below to learn more about each program.
The Arthritis Foundation, Northern California Chapter would like to recognize
The Taylor Family Foundation for hosting Camp Milagros at Camp Arroyo this year. The Taylor Family Foundation's mission is to preserve the wellness and enhance the quality of life for children in Northern California with life-threatening and chronic
diseases, disabilities and youth at-risk through unique therapeutic experiences
and support. For more information, please visit ttff.org.
Juvenile arthritis is a major health concern, yet many people are unaware that juvenile arthritis even exists. Kids with arthritis and their families each have a unique story to tell that can raise awareness about JA and impact policy decisions on a local and national level. The Arthritis Foundation can teach families how to use their voice to educate government officials, school nurses, teachers, health professionals about arthritis and its unacceptable impact.
Learn more about our advocacy efforts.
AFamilies is the e-newsletter for kids, teens and young adults affected by juvenile arthritis, their families and all those who support them. This e-newsletter presents stories, perspectives and resources from across the entire Great West Region.
Read current issue
Learn more about childhood rheumatic diseases, arthritis management techniques, school issues and more through the Arthritis Foundation’s print and online resources. Many of these items are free.
Juvenile arthritis (JA) is an umbrella term used to describe the many autoimmune and inflammatory conditions that can develop in children ages 16 and younger. Learn more about the disease.
Juvenile arthritis affects the whole family and there are many components to proper management of the disease. Read helpful articles about the different types of JA and how it’s diagnosed, possible causes of JA, the effect of JA on your joints and body, treatment options, medications, family life, school issues, the latest research and more!
Check out our virtual community where youngsters can find information on juvenile arthritis and read stories about other children with the disease. Designed for three different age groups – kids (ages 6 to 9), tweens (ages 10 to 13) and teens (ages 14 to 18), the site enables them to learn about symptoms, treatments, doctor visits, growing up with JA and more!
Finding a cure for arthritis starts with educating others that Kids Get Arthritis Too! Check out how the Arthritis Foundation, JA families, and their doctors are raising awareness about this serious and painful disease.
- Hailey Daniels (pictured top right) was honored at the The Prudential Spirit of Community Awards in Washington, D.C. for her efforts to raise awareness of juvenile arthritis and funds for the Arthritis Foundation
- Allison Wanichek (pictured bottom right) encourages students to raise awareness of Juvenile Arthritis by WEARING BLUE and was featured in American Girl Magazine
- Joy Ross shares her story and the impact of juvenile arthritis on her family with Real Simple Magazine
- Dr. Sara Stern explains that arthritis hits more kids than diabetes and other childhood diseases combined in a interview with KSL
Don’t see what you need? Contact Emma Davis about JA resources and opportunities to connect with other families across the Arthritis Foundation, Great West Region.