A newsletter on and about arthritis to keep you informed on treatment advances,
research, personal accomplishments / features, and opportunities for
engagement with the Arthritis Foundation, Northeast Region.

November 2013 


Message from
Ingrid Montecino

I am honored and excited to join you – the families, volunteers, friends, researchers, and clinicians – who are touched by arthritis and who together, are moving to conquer this debilitating disease that strikes more than 50 million Americans (one in five adults).

In my new role as President and CEO of the Arthritis Foundation, Northeast Region, I look forward to personally connecting with you in the pursuit of our mission and our goal of building an influential organization.

Let’s Move Together is the rallying theme for our Arthritis Walks. Lace up your shoes and get out with your family, friends, and colleagues at these inspiring events. Also, remember to don your holiday regalia for our Jingle Bell Run/Walks in December. These signature events are not only the largest fundraisers for the Arthritis Foundation, they are the public face of our cause and the symbol of our size and success.

Wishing you a happy and healthy New Year, and – Let’s Move Together!

                                                                                                                  Ingrid Montecino


Jingle Bell Run/Walk for Arthritis
in November and December

Yes, the holidays are fast approaching. And ‘tis the season for the Jingle Bell Run/Walk, too.

Yes, the Jingle Bell Run/Walk is fun. Dress for the occasion in your best reindeer ears or elf costume or seasonal fashion of choice.

And yes, the Jingle Bell Run/Walk is a timed 5-K race that has been “chosen as one of The 21 Most Incredible Themed Races” by Greatist.com 2012.

Here are the best reasons to be there with bells on...

...Your support translates into research projects to improve treatment for rheumatoid arthritis and develop early intervention treatments for osteoarthritis. Both these areas of investigation are underway thanks to donors to the Arthritis Foundation, including people who participate in the Jingle Bell Run / Walk.

...Your support and participation in the Jingle Bell Run means that the Arthritis Foundation will continue to advocate and speak out for the needs of the more than 50 million Americans who have arthritis.

...Your support will help us to find a cure for arthritis, once and for all.

This November and December, there is a Jingle Bell Run/Walk in a community near you. Click here for a complete list and contact information. Come and have a good time and please…be generous with your support. 


Your are invited to participate in this webinar.

       "Navigating Rheumatoid Arthritis (RA) for the Newly Diagnosed"
       Friday, November 22, 2013 at 12:30 to 1:30pm. Free of charge.
       Click here to register and for more information.


Holiday Gifts That Assist

The answer never seems to get easier: “What shall I give as a holiday gift?” Whether it be for Christmas, Hanukah or Kwanza, gifts that assist are always appreciated. Here are some ideas that are particularly good for someone who has arthritis or other rheumatic disease. 

 

Grab bars in the bathroom are a must.
For added value, have them professionally installed. 

 

 

Bring respite to a caregiver by volunteering to help with care-giving responsibilities. This is a gift with value that cannot be measured. 

 

 


Consider a membership to an exercise facility that has expertise in working with seniors or people with chronic conditions. 



Leisure time can be made even more enjoyable with
easy-to-hold-and-read playing cards. 

 



“Tips for Good Living with Arthritis” is a book from the Arthritis Foundation that provides just that – ideas to help make life easier on topics ranging from child care to cooking to holiday shopping. Click here to order. This gift will be used year ’round. Click here to order.

 

 

Make a donation to a worthy cause.
Click here to donate to the Arthritis Foundation. 

 

Where to find gifts that assist.

Click here for a link to the Arthritis Foundation’s Ease of Use web site which features items that are especially suitable for people who have arthritis.

 

Go to your favorite search engine and enter aids for daily living, or assistive devices or gifts for seniors or specify an item you wish to purchase (ie: easy grip jar opener.)

Larger, more durable items such as shower chairs and grab bars can be found in home centers. For kitchen tools and other handy items look in visit local household retailers.

                                                                                   


We need your help!

We are determined to find a cure for arthritis. And your donation to the Arthritis Foundation brings us one step closer. The Arthritis Foundation recently funded the first phase of a research initiative that has the potential to identify and treat osteoarthritis before joint damage. We are funding research that uses modern crowdsourcing to identify genetic information that can lead to individualized treatments for rheumatoid arthritis. Your donation makes these and other research initiatives a reality!Your donation makes these and other research initiatives a reality!

Click HERE 
to make your donation today.  

 


Supporting Research

Want more information on the two major research programs that are referred to above and are supported by your donations? Click here for inspiring details on the ACL Feasibility Study. Click here to learn about crowdsourcing and research to develop improved treatments for rheumatoid arthritiis. 


Save the Dates for the Advocacy Summit:
March 24-26, 2014 in Washington DC

Click here for more information on what the Advocacy Summit is all about.

For information on the Advocacy Summit, including how to get involved,
email Michele Greco, Regional Director for Advocacy, at mgreco@arthritis.org.

NOTE: Can’t make the Summit? Become an e-advocate and participate in advocacy all year. 
Click here to learn about advocacy and become an e-advocate.


Arthritis Foundation Health Insurance
Marketplace Toolkit

Now online (click here) to help you learn how to make choices in the Health Insurance Marketplaces so you will be well informed when you go to sign up. Included in the Marketplace Toolkit:

  • User’s Guide, including Health Insurance 101
  • Health Reform, including Consumer Fact Sheet and FAQ’s
  • Understanding Your Choices, including Marketplace Publications and Articles
  • Managing Your Costs, including Consumer Centers

The Arthritis Foundation Marketplace Toolkit is open for your use and easy to navigate.


Attention: Important Information on Medicare

The Annual Open Enrollment for Medicare prescription drug coverage (Part D) is October 15, 2013 – December 7, 2013. Plans are making changes to benefits and costs, and there are also new plans in many areas of the country. With these changes, your current plan may or may not be the best plan for you in 2014.
It is very important to use this time period to compare your plan choices and find the plan that best meets your prescription drug needs at the lowest cost. All plans will make changes in 2014. Click here for a 2014 Guide for Medicare Beneficiaries. Click here for the official Medicare web site.


Close to Home

We are where you need us to be, which is in your community. The Arthritis Foundation works in partnership with hospitals, businesses, and local organizations to bring helpful and engaging programs to you. Read on to find out what is going on close to your home in Eastern Pennsylvania, Long Island, New Jersey, New York, Northeastern New York, and Upstate New York.

Eastern Pennsylvania
111 S. Independence Mall East
Suite 500 - Bourse Building
Philadelphia, PA 19106
Phone: 215-574-3060
Email: info.epa@arthritis.org

Social media outlets are online and we invite you to like or follow us for up-to-date information. Our Facebook page is full of useful information to help manage arthritis.  Please like us at https://www.facebook.com/AFEPA.  If you are a family affected by juvenile arthritis, like our JA Facebook page at https://www.facebook.com/CampJRA. Do you tweet? Follow us on twitter @AFEPA.

 Applications will be ready soon for Camp JRA 2014 which will be held from July 13-18.  If you are interested please contact Danielle M. Stephens at dmstephens@arthritis.org or (267) 238-9724.

 

 

Walk With Ease is an exercise program that can reduce pain and improve overall health. Walk with Ease trainings are being held in the Spring 2014. If you are interested in becoming trained please contact Danielle M. Stephens at dmstephens@arthritis.org or (267) 238-9724.


Long Island
150 Broadhollow Rd., Ste 122
Melville, NY 11747
(631) 427-8272 
Email: nsimingt@arthritis.org

Get your feet moving and your hands clapping as you exercise for fun and fitness at a level designed especially for you. The Arthritis Foundation Exercise Program, taught by Helene Just, is being held:
Freeport Recreation Center, 130 E. Merrick Road, Freeport
on eight Tuesdays from November 19, 2013 through January 28, 2014 - 10:00 to 10:45am. Classes are not held on holiday weeks.
Fee: $24 for 8 eight sessions
For information call the Arthritis Foundation at (631) 427-8272

Suffolk County Government provides "Operation Medicine Cabinet," a safe way to dispose of outdated or no-longer-needed medications. A secure box resembling a post office box is located outside the police precinct for use 24/7. Click here for information on "Operation Medicine Cabinet" and other programs, including home repair for seniors, child safety seat inspection, and the immunization action program. 

 


New Jersey
555 Route 1 South, Suite 320
Iselin, NJ 08830
Phone: 732-283-4300 
Email: info.nj@arthritis.org 

Join the JA Network in New Jersey to take advantage of programs and services for families who have a child with arthritis and other rheumatic disease.

Family Day: A family day includes activities and education for the entire family. Adults, teens, and children have their own program tracks for education, networking, conversation, and fun. In the picture at left, teens discussed arthritis while crafting masks during Family Day 2013. For information on upcoming family programs email info.nj@arthritis.org.

Camp CHAT (Children Have Arthritis, Too): Camp CHAT is a six-day sleep away camp for children with arthritis and other rheumatic diseases. In addition to traditional camp fun, campers engage in fun education sessions to improve their knowledge of arthritis and self-care abilities. Click here for information on Camp CHAT. Click here for an application for the Camp CHAT 2014 session.

 


New York
122 East 42nd Street, 18th Floor
New York NY 10168-1898
Phone: 212-984-8700 
Email: info.ny@arthritis.org 

The Arthritis Basics for Change (ABC) presentation is being in two locations in Manhattan.

NYC Parks
Gertrude Ederle Recreation Center
232 West 60th Street
Tuesday, November 19t
11:30 am to 12:30 pm 

NYU Langone Center for Musculoskeletal Care (CMC)
333 East 38th Street, between First and Second Avenues
Joseph and Nancy Errico Learning CenterSixth floor conference room 6-403
Tuesday, December 3
2:00 to 3:00pm

For information call (212) 984-8730 or email info.ny@arthritis.org


Northeastern New York
855 Route 146
Suite 170
Clifton Park, NY 12065
(518) 456-1203
Email: sandrew@arthritis.org 

An Instructor Training for the Arthritis Foundation Tai Chi Program is being held for new instructors and to recertify current instructors.

Thursday, November 21 - 8:30am to 5:00pm and
Friday, November 22 - 9:00am to 5:00pm
For new instructors, attendance on both days is required.
For recertification, attendance is required on Friday only.
Fee: $250

Location: Armistead, 95 Dahlia Street, Rotterdam, NY 12306
Lunch will be provided both days.
For information contact Sonya Andrew at sandrew@arthritis.org


Upstate New York
3300 Monroe Ave, Ste 319 
Rochester, NY 14618 
(585) 264-1480 
Email: info.uny@arthritis.org 

"Put Pain in it Place: How to Get Osteoarthritis Under Control" is being held in Kenmore, free of charge.

Topics covered include: 
*OA causes and treatments
*Strategies to relieve pain
*How to get your pain under control
*Effective and safe exercises

Wednesday, December 11 - 2:00 pm
Schofield Adult Wellness Center
3333 Elmwood Avenue, Kenmore, NY 14217
To register call the Schofield Wellness Center at (716) 874-1566 


 
Contact us at NortheastReporter@arthritis.org.
We especially wish to hear your suggestions for articles
.

 


Editorial Board

Chair
Stephen A. Smiles, MD
Member, Northeast Regional Board and New York Chapter Board, Arthritis Foundation
Co-Director, Center for Arthritis and Autoimmunity NYU Medical Center,
Clinical Associate Professor of Medicine NYU School of Medicine

Ingrid Montecino
President and CEO
Northeast Region, Arthritis Foundation

Sharon Jaycox Daitz
Vice President, Program
Northeast Region, Arthritis Foundation

Beth Gottlieb, MD
Chief, Division of Pediatric Rheumatology
Director, Pediatric Rheumatology Fellowship Training
Steven and Alexandra Cohen Children’s Medical Center of New York

Andrew B. Weinberger, MD, FACR
Immediate Past President, New Jersey Rheumatology Association
Member, New Jersey Chapter Board, Arthritis Foundation
Rheumatologist, West Orange, New Jersey


The Northeast Regional Reporter is supported in part by the following funders:
Amgen, Genentech, Pfizer, and UCB.

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