Juvenile Arthritis

Juvenile Arthritis (JA)
refers to any form of arthritis or an arthritis-related condition that develops in children or teenagers who are less than 18 years of age.

Impact of Juvenile Arthritis:

• Approximately 294,000 children under the age 18 are affected by pediatric arthritis and rheumatologic conditions.
• Ambulatory care visits for pediatric arthritis and rheumatologic conditions averaged 827,000 annually.
• Juvenile arthritis is one of the most common childhood diseases in the United States.
• Arthritis and related conditions, such as juvenile arthritis, cost the U.S. economy nearly $128 billion per year in medical care and indirect expenses, including lost wages and productivity.
•In Florida there are  approximately 16,000 children with arthritis.

Click here for more information about Juvenile Arthritis

Visit our family friendly website  KidsGetArthritisToo.org
• Information, tips and many more resources
• Ways to connect and share with other families
• The latest on medications, treatments and research breakthroughs
• Stories, guidance and support for parents
• Special sections just for kids and teens

Get Connected

Connect with JA Families - Join our JA Parent Networking Group Facebook Group “JA Families – Arthritis Foundation Florida” to connect with parents dealing with juvenile arthritis. The JA Parent Volunteers from this group plan and host our  JA Family Fun Days around Florida for  fun, networking and support.

To connect with the  Arthritis Foundation, Florida Chapter contact
Susan Cuellar, Vice President of Mission Delivery at 1-800-850-9455; scuellar@arthritis.org  

Download our “Arthritis is Unacceptable” flyer to share with others and find out more about what we are doing in Florida to make arthritis unacceptable.

And “Like” our Arthritis Foundation Florida chapter Facebook Page for all the Arthritis Foundation news and events in Florida.

CAMPS for Kids with Arthritis

Family Retreat Weekend at Camp Boggy Creek 
February 14 – 16, 2014 and September 26-28, 2014  
For ages 7-16 (child with arthritis) and their families
For more information and application http://www.boggycreek.org
or call 866-Go-Boggy (462-6449)
Applications for JA Family Retreat are now on the Boggy website

Camp FunRise, Miami
In partnership with Miami Children’s Hospital
June 22-28, 2014
For ages 8-12
Click here for Application

Camp Boggy Creek, Eustis (NW of Orlando)
Member of The Association of Hole In The Wall Camps
July 26-31, 2014  and August 13-18, 2014
TBA For ages 7-16
For more information and application http://www.boggycreek.org
or call 866-Go-Boggy (462-6449)
Click here for helpful information on Boggy On-line Application

Miracle Camp, Pensacola
In partnership with Sacred Heart Hospital
June 13-15, 2014
For ages 8 - 16
Click here for Camp Flyer
Click here for Application PDF
Click here for Application Word

For many young people, summer camp changes their life, not just for a week, but for a lifetime. The Arthritis Foundation Florida Chapter gives children with arthritis the opportunity to make those lifetime memories.

The week long juvenile arthritis camp focuses on what campers can do, not what they can’t do. Campers are able to learn from others who have similar conditions and experiences. The program is designed to increase campers self-esteem by creating opportunities for them to meet personal challenges

For more information about Summer Camp for kids with Juvenile Arthritis, please contact the Arthritis Foundation, Florida Chapter at 1-800-850-9455 and ask for Susan Cuellar, Vice President of Mission Delivery.

2014 Juvenile Arthritis Conference
30th Anniversary Celebration
Keystone, Colorado July 3-6, 2014

The Juvenile Arthritis Conference is the Arthritis Foundation's signature, nationwide event for families affected by juvenile arthritis. This year’s theme is Dream, Believe, Achieve.  The four-day education event focuses on health, wellness and fun for children affected by arthritis, lupus, myositis, ankylosing spondylitis and other rheumatic diseases. Specific educational tracks focus on issues relating to parents, teens/young adults, children affected by arthritis and their siblings. Visit the conference webpage at http://www.kidsgetarthritistoo.org/meet-other-families/2014-conference/   to learn about all the exciting events planned as well as registration and hotel details for this year's conference. And follow all the details on the Juvenile Arthritis Conference Facebook Group Page https://www.facebook.com/JuvenileArthritisConference?group_id=0

Florida Chapter Scholarships

The Arthritis Foundation Florida Chapter each year offers a limited number of scholarships to the JA Conference. Please click here(word) or click here(PDF) for Florida Chapter Scholarship Application and Requirements. Early Registration for JA Conference ends May 28th.  Special consideration will be given to applications submitted before May 16, 2014.  Please contact Susan Cuellar at scuellar@arthritis.org; 800-850-9455 x11 with any questions.

Osceola County School Nurses Learn about JIA – Dec. 7, 2011

Norma Liburd, RN-BC, MN, Clinical Nurse Specialist of All Children's Pediatric Rheumatology gave a wonderful presentation to the very dedicated school nurses of Osceola County. Some of the opics discussed were diagnostic criteria and subtypes of JIA and characteristics of each; school related problems that students with JIA have and intervention strategies; and resources available through the Arthritis Foundation. We appreciate Norma's time and expertise in raising awareness and education of JIA. Click here to view Norma's PowerPoint presentation Part 1. and part 2

JA Family Connect Day – Tampa, Oct 29, 2011 – A Fun Success

A special thanks Hillsborough High School student, Logan Lentini, who volunteered with the Arthritis Foundation, Florida Chapter to host the JA Family Connect Day held on October, 29th.  See Flyer Logan wanted to do something for his brother and other kids with arthritis.  He understands how alone sometimes they feel because so few understand what it like to be a kid with arthritis.  Going to the National JA Conference with his family last summer cemented his idea that he wanted to volunteer more and make a difference. As part of his IB program at school, Logan developed his idea, survey parents for topics, planned the agendas for the parents and kids activities, recruited volunteers and speaker, solicited the donations and managed the logistics.  His hard work and dedication was reward with a very successful fun event.  Pictures from the event our posted on our Facebook page http://www.facebook.com/AFFlorida

Speakers included:

Melissa Hughey: Arthritis Foundation Fundraising
            Information about Arthritis Foundation Events and Fundraising can be found here
Samantha Head,  America's National Teenager 2012:  Living with JA
            A video of Miss Head’s presentation is on her Facebook page  - America's National Teenager 2012 Samantha Head
Dr. Renee Modica, UF Shands & Dr. Robert Nickeson, All Children’s:  Medications and Research
            Click here for Dr Modica’s PowerPoint presentation
Dr. Lise Fox, University of South Florida:   Helping Children Cope
            Director of  Florida Center for Inclusive Communities and Professor at University of South Florida,  Department of Child and Family Studies, College of Behavioral and Community Sciences
            Click here for Dr Fox’s PowerPoint presentation
            websites for resources and information, www.challengingbehavior.org and www.flcic.org
Selina O’Shannon, Disability Rights Florida:  504s/IEPs
            Senior Advocate-Investigator, Education Team
            Formerly the Advocacy Center for Persons with Disabilities, Inc.
            Click here for Ms. O’Shannon’s  PowerPoint presentation

Kids’ Activities included:

            Igi  - The Therapy Bear donated by Baxter BioPharm
            Ima JA Sib Bear, bears donated by AOPII and book written by Logan Lentini
            Balloons and Magic by Mike Jones the Magic Man
            Crowns with Samantha Head, America's National Teenager 2012
            Tucker Turtle, developed and written by Rochelle and Parker Lentini
             And chants, problem solving games and crafts with our wonderful volunteers

Click here to enlarge!

For more information on Florida Chapter programs for kids with arthritis and their families,  please call 800-850-9455 or email scuellar@arthritis.org