|
|
|
|
If your question is not
answered here, please
contact one of our
information specialists.
|
Ehlers-Danlos Syndrome (EDS)
What Is It?
What Are the Symptoms?
How Is It Diagnosed?
Treatment Options
Resources and Suggestions
What Is It?
Ehlers-Danlos Syndrome (A-lerz-DAN-los SIN-drome) describes a group of hereditary
disorders which mainly affect the skin and joints, but may affect other organs. EDS
affects the connective tissues -- the tissues that support various parts of the body such
as skin, muscles, tendons and ligaments. In EDS, the fibrous protein collagen is faulty,
causing the connective tissue to not be elastic or strong.
What Are the Symptoms?
There are 9 types of EDS and symptoms differ depending on the type of EDS. Type I and
III have the following:
- Skin problems, include fragile skin that bruises or tears; soft skin, and slow-healing
wounds.
- Joint problems, including loose, unstable joints; "double-jointed" or
overextension of the joints; arthritis-like problems.
Other types may have these symptoms:
- Lung problems; weak blood vessels; eye problems; curvature of the spine; gum diseases;
problems with blood clotting.
How Is It Diagnosed?
- A review of family and medical history.
- Physical exam, checking for joint overextension.
- Skin biopsy may be performed to study chemical makeup of connective tissue.
Treatment Options
- Diet - to reduce weight
- Vitamin C
- Exercise
- Eye treatments
- Joint protection
- Protection from the sun
- Surgery to correct fractures or dislocated joints
Resources and Suggestions
We Also Suggest:
- Consult your physician for appropriate diagnosis and treatment. Your local chapter can provide a listing of physicians who specialize in arthritis-related conditions.
- Learn to manage your condition -- get involved! Exciting events, volunteer activities and programs, such as the Arthritis Self-Help Course, support groups and exercise programs (consult your physician). Use the Chapter Locator to find activities near you.
- Arthritis Today magazine -- Search for more information or visit Your Arthritis Store to subscribe on-line!
- Your Arthritis Store -- books, newsletters, Arthritis Foundation membership, videos and more.
- Arthritis Today Drug Guide
- Alternative and Complementary Therapies
- Arthritis Today Supplement Guide
- Frequently asked questions about arthritis, treatments and coping skills.
- Arthritis in children, teens and young adults. Check out the information for parents and teachers, too!
- How to Care for Yourself
- Remember, you're not alone! Connect with other people on Message Boards.
|
