Online survey for individuals with chronic illness

July 22, 2009

Have you always wished that you could tell your health care story?  Here’s your chance.

Advocacy for Patients with Chronic Illness, Inc. and the University of Michigan Center for Managing Chronic Disease have been awarded a grant by the National Institutes of Health (NIH) to study the obstacles facing the chronically ill and caregivers, interventions that do and do not work to surmount those obstacles, and ways in which the work done by the NIH, including research and clinical trials, may be helpful to patients with chronic illnesses.  With the help of twelve patients and caregivers, we have drafted a survey which is available online at http://chronicdisease.survey.sgizmo.com .
          If you have a chronic illness such as Crohn's disease, ulcerative colitis, rheumatoid arthritis, fibromyalgia, multiple sclerosis, immune deficiency, or other chronic illness or are a caregiver of someone with a chronic illness, are at least 18 years old, and would like to take the survey, please do so.  If, for any reason, you are unable to take the survey online, or you would prefer to be interviewed by telephone, or if you have any questions at all about the research, please contact Jennifer Jaff at (860) 674-1370.  She will answer any questions you may have, provide more details about the study and arrange for an interviewer to call you to schedule the telephone interview at a time convenient to you.  Any services you or the person you care for may receive from Advocacy for Patients will not be affected by your participation or decision to not participate.

Thank you.

The acceptance of advertising for participants for research studies in this publication does not constitute or imply endorsement by the Arthritis Foundation or any of its chapters of any advertised research protocol. People interested in volunteering for research studies should consult their physicians before enrolling in any research study. The Arthritis Foundation accepts no responsibility for any ill effects arising from participation in any research study.