2013 Advocacy Summit - Washington D.C.
Thank you to our 2013 Alabama Advocates! Sandi Falkenhagen, Pam Snow, Cindy Ducker and Kathy Bryant traveled to Washington D.C. to help educate Congress about the devastating effects arthritis has on 50 million Americans the disease. Check out some pictures from the 2013 Advocacy Summit!
Ignoring Arthritis is Unacceptable: 2012 Alabama Declarations
In conjunction with the 2012 Advocacy Summit, our fellow Alabamians were given the opportunity to share their voice and their story through Advocacy Declarations. This letter or email urges our congressional leaders to step forward and ensure that funding continues for arthritis research programs like those at the National Institutes of Health and Department of Defense.
Birmingham Teen Shares Story at Congressional Briefing on Specialty Tiers
On June 28th at a Congressional Briefing in Washington D.C., 15-year-old Christian Smith shared his experience of having a chronic disease requiring medications sometimes categorized as "specialty tiers," which have high patient cost-sharing and create barriers to treatment.
Other featured speakers included physicians who have witnessed patients foregoing crucial medications because of this practice, as well as co-sponsors of H.R. 4209 - The Patients' Access to Treatment Act (PATA). This legislation would require insurers to impose the same co-pay obligations for Tier IV/specialty tier drugs, such as biologics, as they do for Tier III medications.
The brieifing was sponsored by the Coalition for Accessible Treatments which consists of the American College of Rheumatology, Arthritis Foundation, Crohn's and Colitis Foundation of America, Lupus Foundation of America, National MS Society, National Psoriasis Foundation, Patient Services Inc. and the Spondylitis Association of America.